Before the advent of the Internet, before the entire world became interconnected and capable of communicating with each other, we knew little about rare diseases and/or afflictions. Unless a major news service or a local paper believe that there was “human interest” involved in the individual’s story, such severe physical situations were kept under wraps.
This Is Evan Fasciano
They were not welcome in “polite society,” whatever that means. So back before everyone was online, something like ichthyosis would have been both a medical and communal unknown, and anyone suffering from it “hidden” from the rest of us.
These Are Evan’s Parents