Woman Covered In Tumors Opens Up About Her Condition And Passing It To Her Children

If you’re a parent, then you have passed your genes on to your children; maybe they have your nose or your spouse’s eyes.

Sometimes we pass undetectable genes on to our kids that result in health-related diseases and conditions, like Down syndrome or Cystic fibrosis.


Sandra De Santos passed on her condition to three of her four children. Unfortunately, one of her kids passed away from neurofibromatosis type-1 when he was six.

Neurofibromatosis type-1 is a genetic condition that affects the nervous system and skin and occurs in about one in 3,000 births varying in its severity.


In Sandra’s case, and her kids’, the degree in which the condition affects them is great.

Sandra’s body is covered in tiny tumors.

After her son passed away, Sandra was told it had nothing to do with the condition, but that turned out to be false.


“I always asked the doctors if it was due to my condition, they said it wasn’t related to it,” Sandra explained. “But when he died I read on his death certificate: ‘sarcoma due to neurofibromatosis.’

“I became quite sad for a long time. I have three kids, two have the condition. But they look to me as an example, so I keep going.”


Head to the next page for more on Sandra and her condition…